I'll start by apologizing to all of you who are quite supportive to me and have been since I met you all. But I'm going to take a break from this blog for awhile. My husband at times has encouraged me to go out and visit the other MS blogs and I have tried, but recently I've had much more difficulty visiting as most have you have been dealing with MS much longer than I have. And when I read some posts from strong people struggling with this disease, I can only see my future which starts to get me scared and I cannot bring myself to do it for now. I think mentally I prefer to continue blissfully thinking that this will not get any worse and I need to keep a positive attitude. And just work my job and take care of my family and critters. Things I used to just put off as a bad bed, being tired from night shift and whatever now I've become too hyper-aware of being related to MS, which is really freaking me out right now. I need to focus on the here and now and not worry about what my physical and mental future may be. So again, I apologize and when I'm ready, I'll be back. Until then, all take care and heal well...........
10 comments:
Just so you know Callie, after having this disease for 10 years now. I still get those moments of being overwhelmed by this disease. I completely understand your needing a break. I do that to at times.Since we live close to each other once this weather gets a bit better I would love to get together with you. We don't even have to talk about ms. I know you have the great support of your husband but just know I am here for you
Thanks, Sharon, I appreciate it. It does get overwhelming and I sometimes feel guilty if I'm having a good and others are struggling.
I'm sure others have probably said (or will say) this already, but just in case it will help, I've had a lot of those same feelings myself: especially the ones where I feel guilty if I'm doing really well with some aspect of my disease. It's hard to feel great when you know how bad others you care about might be feeling. (I think Linda wrote about this recently, for that matter.)
This MS thing is Hard, with a capital H. I didn't realize how hard it would all be when I was first diagnosed (almost two years ago now... EEK!) because I was so focused on just making it through each day and doing what needed to be done to get better. Once I started living with the realities for a while - taking the meds, dealing with side effects, worring about relapses, wondering which of my latest bodily quirks were the disease and which were not - I started to realize the enormity of the whole thing. It sucks. No two ways about it. The uncertainty, for me, is the hardest part: as a person who likes to plan everything out, the not knowing makes me a little bit crazy sometimes. So I just do what I can do and hope to do better the next day.
So, my (admittedly unrequested) advice is: do what you need to do to take care of yourself. We'll all be here when you get back. :)
Thanks, Zee, The reality can be just too overwhelming........
No need to apologize. Take care.
May the road rise up to meet you.
May the wind be always at your back.
May the sun shine warm upon your face;
the rains fall soft upon your fields and until we meet again,
may God hold you in the palm of His hand.
Diane, Thank-you, We used to sing that in girlscout camp before meals. It was everybody's favorite.
Hi, I apologize for the 'form' letter but it is the easiest way to pass word most quickly.
I am thrilled with the response to the MS Blogger project started at my blog, Brass and Ivory. I appreciate all those who took time to post about it on their blogs. I have discovered even more bloggers who have MS, whether they blog about the MS or not. A new listing is available at MS Blogger Community Project Revised.
Secondly, I'm looking for submissions for next week's Carnival of MS Bloggers. Information can be found at the end of each issue archived at Carnival of MS Bloggers. What I'm looking for this week are posts related to creativity. I discovered so many new bloggers who quilt, or knit, or crochet, or write, or photograph, etc. Basically, what do you do to express yourself?
Thank you so much for participating.
Lisa Emrich
P.S. I also apologize for any increased 'spamming' of blog comments due to my growing linklist of bloggers with MS. For that I am sincerely sorry.
Just wanted to say hi, I was thinking about you. Yesterday was a gorgeous day and now look at this morning. I'm ready to go back under the covers. Have a great Easter.
Sharon
Callie, I totally understand. See how long it's been since I visited your blog? I take breaks often, I also swore off MS support group meetings locally. I was depressed for weeks! It really helps to keep a positive outlook and be in the moment instead of what might be. Take care..it's spring time...very uplifting.
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